Tuesday, October 20, 2009

Wow, thank you

To whoever sent the "Birthday Card" to us today we were so suprised and so happy. Thank you so much. I wish I knew who it was so we could thank you in person.
Jessica

Thursday, October 15, 2009

Radiation

Radiation starts on Monday. They are going to do my mapping (where I get the radiation) and also my first treatment on the same day which is great. Usually it is two appts but they will combine into one since I have to drive an hour each way.
So after 10 to 14 days of radiation (every day but Saturday and Sunday) I will hopefully not have as much pain. And I am still on the chemo so that should also help.

Saturday, October 10, 2009

All the news...

Well, I guess it has been awhile since I have posted on here but wanted to bring everyone up to date. It has been a bit crazy around here.
So after having some pain in my side for a couple of days I went to my regular doctor and he sent me to the hospital for a CT scan thinking that my gallbladder needed to come out. But it turned out that it was actually cancer on my liver that hadn't shown up on any other scans. That sucked.
Then met with oncologist and he said the oral chemo should shrink that as well and I wouldn't be in so much pain. But that didn't seem to happen so I mentioned to him when I saw him next (this past Monday) that it still hurt pretty bad. So he called the radiation oncologist and I got an appt. the next day.
Radiation oncologist (let's call him McDreamy) said that he was really excited to be able to use the "Triolgy" on me which is radiosurgery and he has never been able to do it on a liver but I looked like a good candidate. So two days later I went back for a scan to see if I was a candidate for this. If not then I would be treated with regular radiation.
The techs said everything looked good. They thought it would all work out.
Friday at lunch, McDreamy called me and said, not only can I not do the radiosurgery (which would have killed the cancer on my liver) my liver is covered with more than 30 cancerous lesions. So that really sucks. They don't really know what is going on at this point other than it is a pretty nasty cancer I have. (does cancer take on your personality? I'm pretty stuborn, so is this cancer. Discuss).
So on either Tuesday or Wednesday I will start conventional radiation for 10ish treatments to shink the tumors and then hopefully I will not have the pain. I am also back on the oral chemo. Typically when you do radiation you don't do chemo at the same time but McDreamy wants to fight this from all angles. I'm all for that.
So keep your fingers crossed for me. We're looking at some other options (other doctors, etc) just to make sure all bases are covered.

Friday, October 9, 2009

Lots new

I'm pretty tired tonight so I am going to post tomorrow but there have been some major changes and again, they aren't good.
The main thing is it looks like my liver has cancer all over it and they are going to do radiation starting on Tuesday or Wednesday. Back on the oral chemo.
More tomorrow.